Page 62 - MaquetaFundCIEN-2019-ENG

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Annual Report 2019
CIEN Foundation Tissue Bank (BT-CIEN)
Since its opening in May 2010, the CIEN Foundation Tissue Bank (BT-CIEN) has trav- eled a path of growth and consolidation in the field of Spanish Neuroscience, sup- porting national and international research groups and maintaining close contact with neurological disease patients and relatives associations.
The number of registered donors in the BT-CIEN registry has continued to grow every year, as has the tissue donations made at our Center within our Internal Do- nation Program, which involves residents of the Queen Sofia Foundation Alzheimer Center (CAFRS), and the External Donation Program, that involves donors from the Region of Madrid and other Regions.
There is also an increasing number of research groups applying for biological sam- ples from BT-CIEN, especially groups from the Center for Networked Research in Neurodegenerative Diseases (CIBERNED).
One of the missions of BT-CIEN is to promote the creation of new neurological samples biobanks whenever donors and researchers demand them. The Region of Murcia Brain Bank (BCRM), the Neurological Tissue Bank from the Institute of Neu- roscience of Castilla y León (BTN-CyL) and the of Queen Sofia University Hospital Biobank from Cordoba are active examples of this commitment. At the present time, support is being provided for the creation of a new NTB in Ciudad Real, as a reference biobank for the Community of Castilla-La Mancha, and a NTB in Zarago- za.
In 2013, the BT-CIEN has been accredited by the Council of Health of the Region of Madrid, according to what is established in the Royal Decree 1716/2011 on Bio- banks, and registered in the National Registry of Biobanks of the Carlos III Institute of Health.
In January 2014 the Biobanks National Network Platform (PRNBB, for its acronym in Spanish), promoted and funded by the Carlos III Institute of Health (2014-2017) was constituted, with participation of the main biobanks in the country, both hospital and non-hospital, including BT-CIEN. PRNBB mission is to create a stable organiza- tional structure that allows the coordinated activity of participating biobanks in the collection, management and transfer of biological samples of human origin. Before concluding its period of activity in December 2017, the PRNBB renewed its commitment to the ISCIII for a new funding period, 2018-2020. The BT-CIEN has played a prominent role in the R&D&I Program of the PRNBB and in the new phase of the platform, initiated in January 2018, has assumed the coordination tasks of the R+D+i program as a whole. Moreover, since 2012 the BT-CIEN has the ISO 9001/2008 quality certification, renewed in 2016, and that was also renewed in 2018 under the ISO 9001/2015 standard.
In September 2018, the 1st Symposium on Neurological Tissue Banks was held in Salamanca, organized by BT-CIEN and the Castilla y León Institute of Neuroscienc- es. As agreed there, the Neurological Tissue Banks Working Group (NTBWG) was set up within the RNBB at the beginning of 2019, with the participation of the 15