Page 130 - Memora anual Fundación CIEN 2017
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nical trial on breast cancer; and Julián Isla, president tive disorders patients, developing joint actions to
and founder of Foundation 29 and scientific director disseminate advances in the Foundation research
of the European Federation of Dravet Syndrome. This activities This was the case of the VII National Con-
session achieved the main objective of this day: to federation of Associations of Relatives of Alzheimer
exchange and offer information on the participation patients (CEAFA) Congress held in Malaga on No-
of people in clinical trials from regulatory, medical, vember 9-10, 2017 in which Mª Ángeles Pérez, ma-
ethical and human perspectives. nager of the CIEN Foundation, gave a lecture in the
In terms of donations, Dr. Alberto Rábano, director plenary session entitled "The integral dimension of Az-
of the Tissue Bank and responsible for the CIEN Foun- heimer”. The Congress was marked by a content of
dation neuropathology area, continues to promote eminently associative and social nature and a clear
the work carried out in the BT-CIEN. The past month constructive vocation towards the attendees, so
of March, 2017 delivered talks in the Queen Sofia that they could contribute and receive knowledge
Center of Seniors of the Red Cross and in the Red to adapt and implement them in the confederated
Cross Center on Muguet street in Madrid, one of the associations and other resources providing speciali-
main integral centers of the Red Cross, whose facili- zed services to people with Alzheimer's and other
ties count on a Day Center for the Elderly and Alz- dementias.
heimer's patients. In addition, they also carry out
training programs both for the general population Likewise, coinciding with the events organized to
and internally in the Institution. These talks are aimed mark World Alzheimer's Day, Mª Ángeles Pérez spoke
at users of centers, patients and relatives of patients at the Henares University Hospital on "The role of or-
with dementia, with the aim of encouraging the do- ganizations in the fight against Alzheimer's disease"
nation of brain tissue, within the BT-CIEN program, during the IX Symposium on Alzheimer's Disease of
which is essential for researchers to advance their the Henares. This Conference is organized every year
projects by having samples of brain tissue from he- by the Association of Relatives of Alzheimer's, Par-
althy or affected donors. Moreover, Rábano was in kinson's and other dementias patients of the Henares
November in a meeting on dementia in the Valde- corridor.
lasfuentes Sports City of Alcobendas that brought to-
gether several prestigious professionals to transfer Another meeting worth to highlight during 2017 is the
the latest advances in Alzheimer's disease and other Huntington’s Family Reunion, which took place on
dementias to attendees. Dr. Alberto Rábano was in March 11, at the San Pedro de Alcántara Hospital in
charge of talking about the importance of brain do- Caceres. The last Huntington’s Family Meeting, pro-
nation for research and the application of future the- moted by the Caceres Association of Huntington
rapies, highlighting the important achievements and the European Huntington's Disease Network. The
made by the Tissue Bank of the CIEN Foundation. conference was based on five conferences delive-
red by experts, such as Dr. Alberto Rábano, head of
Meetings with Associations of relatives the CIEN Foundation neuropathology area and di-
of Alzheimer’s patients and other rector of the CIEN Tissue Bank (BT-CIEN). In his lecture
neurodegenerative disorders entitled "Tissue Banks for Neurological Research", he
explained the essential role that donation of brain
During 2017, CIEN Foundation organized and parti- tissue has for research and treated with special at-
cipated in a series of meetings with associations of tention, the specific logistical problems that involve
relatives of Alzheimer's and other neurodegenera- donations in Extremadura, obstacles that from the
CIEN Foundation Annual Report 2017 / 130
