Page 109 - Memora anual Fundación CIEN 2015
P. 109
7. SOCIAL DISSEMINATION
7.1. Outreach activities
One of the founding goals of the CIEN Foundation is gue on Neurodegenerative Diseases", organized by
to translate to society in an easy and accessible the Spanish Alliance for Neurodegenerative Disea-
manner the advances and progress made in the re- ses (Neuroalianza) on 25 June 2015 at the Ministry of
search in neurological diseases. Health, Social Services and Equality, and aimed at
all those involved in improving the quality of life of
For this reason, the responsibles of the CIEN Founda- people affected by neurodegenerative diseases:
tion departments have organized, as every year, va- responsibles and workers in patient associations, so-
rious activities that allow the dissemination of the cial health professionals, those affected and their re-
research work carried out by its professionals. This latives, representatives of the administration, etc. At
allows them to bring the scientific field to society in a the meeting, public institutions, health authorities, ex-
kinder way, while translating results and relevant in- perts, associations and affected individuals analy-
formation on the various neurological diseases under zed, on the one hand, the social initiatives that exist
study. to protect and improve the quality of life of people
affected by neurodegenerative diseases and, se-
During 2015, CIEN Foundation continued to develop condly, advances and current research for an inte-
activities to disseminate the research carried out by grated approach to these pathologies. The aim of
its professionals, which has been so succesful in pre- this meeting was to establish a meeting point and
vious editions. It is the case of the World Parkinson's generate debate around reality, the current situa-
Day. On April 10, 2015, María Ángeles Pérez, Mana- tion and approach to neurodegenerative diseases
ger of the CIEN Foundation and CIBERNED, partici- in our country, thanks to the participation of the
pated in the main event, organized by the Catalan main authorities involved in these pathologies.
Association for Parkinson (ACAP, for its acronym in
Spanish). During the event, held in CaixaForum, Bar- The conclusions drawn from the conference will
celona, the Clinic Hospital neurologist and member serve Neuroalianza to continue with its mission to re-
of CIBERNED Steering Committee Eduardo Tolosa present and defend the interests of the people it
spoke about the role of the patient and Associations stands in for. The meeting has a discussion or dialo-
in Parkinson's research. and three round tables were gue format and there were representatives of the
held devoted to complex treatments in fluctuating institutional and health, social and scientific sectors.
Parkinson's disease: apomorphine, duodopa, and
deep brain stimulation. A conference reviewing new In addition, in May 2015, Dr. Rábano participated in
treatments and technologies that will shape the fu- Salamanca at the Third Meeting of the State Group
ture of research and treatment of the disease, which on Dementias, of which we the Foundation is a
affects between 120,000 and 150,000 people in member since its inception in 2014. The meeting ad-
Spain, also took place. dressed, among other issues, conclusions and pro-
posals to advance the definition of an national
It is also the case of several meetings organized by policy on Alzheimer, while the external technical
Institutions throughout Spain in which participated evaluation report of this disease in Spain was analy-
Alberto Rábano, Head for Neuropathology and di- zed. This group was created with the mission to de-
rector of the CIEN Foundation Tissue Bank. An exam- velop a of National Cooperation Network on
ple is the 'Meeting of Huntington's disease families', Dementias that allows for offering Spanish society
held at the San Carlos Hospital in Madrid, on 3 No- with a response to the social reality of these disorders
vember 2015. Or the "NeuroMeeting: Experts Dialo- and the vision to place Spain as an international re-
CIEN Foundation Annual Report 2015 / 111
