Page 82 - Libro Memoria Cien Inglés
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9001 2008, and the updated standard different national and foreign research
ISO: 9001 2015 in 2017. centers, many of them part of the
CIBERNED research consortium. The
During these years, the BT-CIEN's own results obtained in these samples have
activity has experienced sustained so far resulted in more than 100 scien-
growth, both in registering donors tific publications, many of them with a
and obtaining donated brain tissue, high impact factor.
as well as in the transfer of samples
to researchers. The BT-CIEN registry The trust of clinicians, patient, and fa-
currently includes more than 700 ac- mily associations and, naturally, donors
tive donors. The BT-CIEN sample files and their families, has been essential
on the 10th anniversary of BT-CIEN for BT-CIEN to be today among the
counted with brain tissue from a total first banks of neurological tissues in
of 742 donations, 165 of which from our country, and for allowing us to
patients from the cohort of the Queen continue looking forward to the future,
Sofia Foundation Alzheimer´s Center despite the current difficulties.
(CAFRS). It should be noted that the
latter have abundant associated clini- As the only neurological tissue bank
cal data, serial blood samples obtained within a national public body, BT-CIEN
during the follow-up of the patients, has promoted and contributed to the
and numerous magnetic resonance development of other brain banks in
studies carried out in the center pre- our country, such as those currently
and postmortem. Slightly more than operating in Murcia, Salamanca, León,
50% of donations have a primary final and Córdoba. BT-CIEN also participates
diagnosis of Alzheimer's disease, while in the National Network of Biobanks,
the remainder include the most preva- promoted by the Carlos III Institute of
lent neurodegenerative disorders and Health, and has contributed to creating
the rare and less frequent neurological the Neurological Tissue Banks Wor-
diseases, as well as brain tumors and king Group (GT-BTN), a cooperative
vascular and inflammatory diseases structure that for the first-time groups
of the nervous system. BT-CIEN also together the brain banks in Spain.
stores about 8,000 samples (about As in so many other social and scienti-
200,000 aliquots) of blood from the fic aspects, the current COVID-19 pan-
CAFRS and Vallecas Project cohorts, as demic represents possibly the greatest
well as about 300 saliva samples and challenge that neurological tissue
about 600 postmortem cerebrospinal banks have had to face in their history.
fluid samples. BT-CIEN has provided This disease is being particularly cruel
thousands of samples to some 50 to the population group to which most
Annual report Fundación CIEN 2020 82
