Page 119 - Annual Report 2018
P. 119
7. SOCIAL OUTREACH
The CIEN Foundation in the Brain • The Brain on the Spanish National Radio
Spanish Council Station
The CEC participated in the radio program on
The Spanish Brain Council (CEC, for its acronym in the Brain in ‘Open Future’ on the Spanish
Spanish), was founded in 2009 as a non-govern- National Radio Station broadcast on Sunday,
mental organization that brings together scientific June 3..
societies, patient associations and industry, with the • Joint statement 12%… 10%… 8%… Counting
main objective of promoting brain research in Spain down to zero. Towards a future with
and thus expanding the knowledge of the functio- underfunded health research?
ning of the healthy brain, its diseases and their social The CEC showed its support for the initiative
impact. The CIEN Foundation is one of its founding led by the EBC to request an increase in the
members and participates as a Secretariat in its “Horizon Europe” budget and its redistribution
Board of Directors since November 2013. The CEC to ensure that more funds in “Health” are
performs these tasks in permanent contact with the allocated to the European Commission, the
European Brain Council (EBC), participating in turn European Parliament and the Council.
as a member observer in the Academy of the Euro- The "Horizon Europe" proposal of June 2018
pean Brain Council and as an alternate member of included a global budget of 94.1 billion euros,
the representation of the Academy in the EBC Ge- with only 7.7 billion euros for "Health" (8%). The
neral Assembly. EBC strongly believes that the proposed
budget is insufficient to address social
In 2018 the CEC has participated in the following ac- challenges effectively. It is estimated that the
tivities:
treatment of brain disorders alone will cost
about €800 billion annually, instead the
• Survey on the current state of care for patients
suffering from brain diseases proposed budget for “Health” confirms a
constant decrease in funding over time (12%
The CEC participates in the survey on the
current state of care for patients with brain during 2007- 2013, 10% during 2014-2020 and
8% during 2021-2027).
diseases promoted by the National Brain
Councils and the EBC during the • Event «The value of treatment: round table on
the economic cost of Alzheimer's in Europe»
spring of 2018.
• National Workshop on Off-label Use of The CEC attended last September 25 the
event "The value of treatment: round table on
Medicines: Declaration on good practices of
the use of medicines outside the technical the economic cost of Alzheimer's in Europe"
presented by MEP Heinz K. Becker,
data sheet in Spain.
The objective of this EBC campaign was to moderated by Geoff Meade and chaired by
the president of EBC, Prof. Monica Di Luca.
raise awareness about the conditions
necessary to correctly implement the Its objective was to gather experts from the
value of treatment (VoT) project and the
prescription for the use of medicines outside
Alzheimer's field.
the technical data sheet, to promote its • Let's add to normalize life with Multiple
discussion and to support the
‘Declaration on good practices of the Sclerosis
On Thursday, October 4, the “Sumemos”
use of medicines outside the technical data
sheet’. In Spain, the CEC organized (Add) meeting to normalize life with Multiple
Sclerosis took place at the Casa del Lector
an event at the Cajal Institute, together with
the EBC, in which medical societies, (Paseo de la Chopera, 14 Madrid). Merck, in
its commitment to Multiple Sclerosis (MS),
patient associations and industry participate
to present and debate this organized the Leadership Forum “SUMEMOS”
to build among all the EM community a
controversial issue.
platform for continuous dialogue and
CIEN Foundation Annual Report 2018 / 119
